Bone Marrow sympsium in burlington update

Hi all

Today i got a comment on my page and it made me realize how neglected ive let my page be. So heres an update todaay is 3 years 2 months since my transplant whooo

I’m back to work full time mostly 6 days a week and my strentgh is better but i still get achey i think it’s the cold weather i feel it in my bones  alot  but hey who am i to complain :)   The comment that i got from kevin and jean walsh is to  spread the word about a symposium coming to Burlington, MA in March of this year (2010) for bone marrow survivors. I heard about this also from my bone marrows survivors group at Dana Farber i belong to and i will pass on more information when i get it. I guess last time it was held it was held in houston and they got over 300 bone marrow transplant survivors to come so hopefully this will top that. A man i met at group Wil Traub told me that the transplant group felt like a fraternity and that fits this perfectly from transplant survivors to our donors to our caregivers family husbands wifes we are a big fraternity and with more people surviving transplants now a ever growing one. We are lucky to be here some with more complications then others and trying our best to live a normal life after transplant or as they say “the new normal” . This is a great chance to meet people just like you who have gone thru the chemo radiation transplant ect.. and hear their storys and share yours to hear experiances that may mirror yours or to hear others have the same challenges and things happen to them that you thought were only you. The great thing about the group at farber is we can talk to each other people will say i get these cramps and others will say i get those to  and this helped and you realize it’s not just you going thru it it’s part of the process and relieves some worrys you had thats happpened a few times where you can relate and that helps alot.  Although going thru transplant is no fun i have met so many people from all walks of life some still with us some we have lost and i am proud to be in this “fraternity” of fellow survivors still here loving the sun the grass the flowers birds dogs cats my wife and family and cherishing the friendship i have from meeting everyone i have thru this journey it has changed me for the better in so many ways.

My best to you and your familys

Scott

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