Hi All
Well its been 2 years since my transplant and everything is going great!!! Went in for my 2 year at Dana Farber in Boston and they took 20 vials of blood no bone core yay!!! those thing hurt ><. And Dr. Antin told me to stop taking the prograf anti rejection drug and if i dont have any flare -ups of my graft vs host on my skin to stop all my meds in a month whooooo!!! To go from 41 or so pills 2 years ago when i first got out to none in a month is huge!!!! I went back to work sept 1rst doing the 6 days a week grind again now delivering kitchen sets, stools, repairing furniture (without spraying which is harder but i feel inhaling the aerosol sprays in repairing furniture for years may have brought this on tho my Dr. says he doesnt think so) and working in the stores of Chair Fair when needed i’m back to my routine before i got sick yay!!! Suzanne says yay!!! Now we have some extra money to pay off the bills that come with being sick. Man you dont realize how fast your credit cards get filled up when your sick it’s tough on you and your family because you still need things and SSD and SSI tho godsends when your sick don’t pay a lot and you basically exist until you get better. The good news is being back to work is great (oh god did i say that and mean it?) Troy the dog is 2 now he was with me thru my transplant and helped a lot just being there with me he’s sooo cute. I joined a group called One to One at Dana Farber its a volanteer program where if someone who is going thru a transplant, or any type of cancer and treatment can talk to someone who has gone thru what they are going to go thru and you can tell them your story and what to expect and help alleviate some of their fears because cancer sucks lets face it it’s scary to be diagnosed with and treatments for it are tough to go thru to but it’s not the death sentence it used to be. So many people live with it in remission and the new drugs they have can do so much to increase your life with cancer and some things they can do can cure you look at John Lester he’s a great story and me 2 years later back to work off almost all my meds and excited to have my life back Whooooooo!!!!!!! So many people i have met throughout my journey so many awesome patients i have met at Dana Farber so many nurses Dr’s social workers I thank them all from the bottom of my heart for all they have done for me. I’m glad i joined the One to One program just to give back something for all they have done for me. The One to One program is free to join and the people i have met in it are wonderful if you want to join it please call Dana Farber 1-617-632-4020. To everyone out there thankyou for reading my blog it’s been a journey and i am very lucky to still be here the Dr’s at Dana Farber were amazing and everybody that helped with prayers phone calls words of encouragement e-mails you made a big difference to me i am eternally grateful to you all. Now if i can hit the megamillions tonight i’d be set its only 126 million not like you could retire or anything but i’d still take it lololol.
Happy holidays to you all This picture is from this summer ive been lazy in the picture taking department lately. Going back to work is great but i do get tired faster than i did staminas not back the way it was before and strength is getting better i had no strength when i first went back. I’m up to 195 pounds got the 6 pack rolls again lolol i call it winter fat (wink) lololol
Take care see you soon
Scott
