Happy Easter!!!!

Hi everyone

Happy Easter to you all. I can’t wait for spring warm days and summer. Things are going well for me except for the skin GvH flair ups i have every now and then i’m healthy yay!!!!!!!!  GvH of the skin in my case is like a red rash and dry skin protopic cream and skin lotion make it go away so thats my treatment for it. Feeling stronger now and i’m a lot less tired than i have been which is awesome. I have been weened off most of my medications only on acyclovar (anti viral med) and Prograf (anti rejection med) and the wonderful nuclear yellow tutti frutti flavored Mepron yum Mepron prevents a certain type of pneaumonia you can get after transplants. Ive been eating anything i want no buffets tho to many germs but i did get a kelly’s roast beef sandwich yesterday my first roast beef sandwhich in a year that i could get out and it was heaven soooooooo goood!!!!

My physical strength is getting better tho it’s nowhere close to where it was as far as power not that i was a body builder but i could lift a lot more heavier things than i can now and my reflexes are getting better tho i could never be on dancing with the stars unless the dance i do is the “robot” lol

But man am i sooo glad to still be here to enjoy all the good days and bad and so thankful to celebrate the holidays like Easter. My anniversary with Suzannes june 26th 25 years unbelievable how time flies by so were going to foxwoods to celebrate and spending the night i can’t wait to go.  My weights almost 190 now i want to keep it 190-200 range i was 240 before transplant and that was to heavy but some of that might be because of my Aplastic Anemia at the time. I look skinnier than i am in this new picture with my dog Troy the evil cocker spaniel

If i can be of help to anyone thats going thru any of the things ive gone thru or are going to go thru please e-mail me Scorpico39@hotmail.com

Wishing you all the best in good times and bad

Scott aka scorp37

In memory of Mary

Hi all it has been a while scence i posted and today i got some bad news><. When i first went to Dana Farber i was priveledged to meet a couple named Len and Mary. Mary had non hodgkins lymphoma and had had a bone marrow transplant at the time i had not had mine and i was talking to people in the waiting area picking their brains about their experiences trying to get myself ready for mine and listening to their experiences to prepare me for wha i would go thru. Len and Mary were from New Mexico and had come to Dana Farber for treatment and when i met them they had just gotten the o.k. to return home it had been 236 days or around there Mary had grafted slowly but was looking good and feeling good enough to go home. Over time at home Mary had relapsed and had come back to Dana Farber for another mini transplant to save her life Everybody wanted so much for this to work Mary had a strength and courage few possess she went thru so much complications would arise and she would fight them and when it looked bleak she would make what seemed to be the turn around we all wanted she did this over and over during the months after her mini transplant and i remember seeing her after one of her bouts where things didnt look good at dana farber looking great laughing and joking and just being Mary a wonderful lady i wish you all had got to meet. Mary lost her battle this week and i got the call from Lenny tonight it is with a very sad heart i write this tonight.Lenny and Mary were married and together 35 years scence college days and i can only imagine the hole her loss has made in his life to lose your best friend and lifelong soulmate at a to young 53 years of age has got to be so tough. Lenny took care of Mary during her fight to live like we would all want to be taken care of if we ever got sick his strength during tough times is a testimate to his love for mary. I am so glad to have met them and am proud to call them my friends and i will miss Mary but she will live on in the memorys of those who knew her and loved her and called her friend she was the toughest woman i have ever met.

scott